Bereavement Support
Note-some of the web sites will be more appropriate than others based off of your unique situation.
EriChad grief support – http://www.erichad.com/index.html
Unite – http://www.unitegriefsupport.org/
Always loved, never forgotten – http://home.comcast.net/~alnf1/
Babysteps – http://www.babysteps.com/
Compassionate Friends – http://www.compassionatefriends.org/home.aspx
A Place to Remember – http://www.aplacetoremember.com/
Different Kind of Parenting – e-zine – http://kotapress.com/section_home/parentingZine_intro.htm
The Centering Corporation – http://www.centeringcorp.com/catalog/
Compassionate Friends – http://www.compassionatefriends.org/
Helping after Neonatal Death – http://www.handonline.org/
Mothers in Support and Sympathy – http://www.misschildren.org/
Grief Watch – http://www.griefwatch.com/
Hygeia Foundation – http://hygeia.org/home.htm
Honored Babies – http://www.honoredbabies.org/home.htm
Faces of Loss, Faces of Hope – http://facesofloss.com/
Hope XChange – http://hopexchange.wordpress.com/
Resource Catalog – http://www.griefresourcescatalog.com/catalog/
Compassionate Care/Palliative Care/Perinatal Hospice –
Perinatal Hospice – http://perinatalhospice.org/ *This web site has a variety of information for parents including birth plans and what to do when you decide to continue your pregnancy in spite of a poor or fatal medical diagnosis.
Baby Steps – http://babysteps.com/
National Hospice and Palliative Care Org – Perinatal – http://www.nhpco.org/files/public/ChiPPS/ChiPPS_February_2007.pdf
String of Pearls – for support while waiting for birth – http://www.stringofpearlsonline.org/
“Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life” by Amy Kuebelbeck – (Book to buy) – Can be purchased from major bookstores or Amazon.com
Now I Lay Me Down to Sleep – newborn photography for families anticipating a brief time with their baby – http://www.nowilaymedowntosleep.org/
Waiting with Love: http://www.erichad.com/wwl/
Continuation of Pregnancy and Pregnancy support –
Carrying to Term – http://www.geocities.com/tabris02/index.html
Continuation debate – http://bmj.bmjjournals.com/cgi/content/full/313/7055/478
Waiting with love – http://www.erichad.com/wwl/
Remembrance Photography – http://nowilaymedowntosleep.org/
A Heartbreaking Choice – http://www.aheartbreakingchoice.com/
Decision Making
“A Time to Decide, A Time to Heal: For parents making difficult decision about babies they love”, by Minnick, MA; Delp, KJ, and Ciotti, MC (Book to buy) – out of print, but can still be can be purchased through www.amazon.com, www.aplacetoremember,com
“Precious Lives, Painful Choices: A Prenatal Decision-making Guide”, by Sherokee Ilse (Book to buy) – can be purchased through www.amazon.com, www.aplacetoremember.com, www.centeringcorp.com, and your local bookstores.
Genetic Counseling and Rare Diseases
National Organization for Rare Diseases – http://www.rarediseases.org
OMIM – genetic disorders research tool – http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
Genetic Alliance – http://www.geneticalliance.org/
Genetics Reference – http://ghr.nlm.nih.gov/handbook;jsessionid=4BBECA938D6A8EFFA734A427191EC194
Fetal Syndromes – support, research, advocacy – http://fetalhope.org
Should you get genetic counseling? – http://www.babycenter.com/0_prenatal-genetic-counseling_1607.bc
National Society of Genetic Counselors – http://www.nsgc.org/
Postpartum Depression
http://www.depressionafterdelivery.com/Redirect.asp
http://www.ppdsupportpage.com/
http://www.womenshealth.gov/publications/our-publications/fact- sheet/depression-pregnancy.cfm
angelbabynetwork.org 