Medical Resources

Bereavement Support

Note-some of the web sites will be more appropriate than others based off of your unique situation.

EriChad grief support –

Unite –

Always loved, never forgotten –

Babysteps –

Compassionate Friends –

A Place to Remember –

Different Kind of Parenting – e-zine –

The Centering Corporation –

Compassionate Friends –

Helping after Neonatal Death –

Mothers in Support and Sympathy –

Grief Watch –

Hygeia Foundation –

Honored Babies –

Faces of Loss, Faces of Hope –

Hope XChange –

Resource Catalog –

Compassionate Care/Palliative Care/Perinatal Hospice –


Perinatal Hospice – *This web site has a variety of information for parents including birth plans and what to do when you decide to continue your pregnancy in spite of a poor or fatal medical diagnosis.

Baby Steps –

National Hospice and Palliative Care Org – Perinatal –       

String of Pearls – for support while waiting for birth –

“Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life” by Amy Kuebelbeck – (Book to buy) – Can be purchased from major bookstores or

Now I Lay Me Down to Sleep – newborn photography for families anticipating a brief time with their baby –

Waiting with Love:

Continuation of Pregnancy and Pregnancy support

Carrying to Term –

Continuation debate –

Waiting with love –

Remembrance Photography –

A Heartbreaking Choice –

Decision Making

“A Time to Decide, A Time to Heal: For parents making difficult decision about babies they love”, by Minnick, MA; Delp, KJ, and Ciotti, MC (Book to buy) – out of print, but can still be can be purchased through, www.aplacetoremember,com

“Precious Lives, Painful Choices: A Prenatal Decision-making Guide”, by Sherokee Ilse (Book to buy) – can be purchased through,,, and your local bookstores.

Genetic Counseling and Rare Diseases 

National Organization for Rare Diseases –

OMIM – genetic disorders research tool –

Genetic Alliance –

Genetics Reference –;jsessionid=4BBECA938D6A8EFFA734A427191EC194

Fetal Syndromes – support, research, advocacy –

Should you get genetic counseling? –

National Society of Genetic Counselors –

Postpartum Depression  sheet/depression-pregnancy.cfm